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Clinical Programs: Caring for Families
Clinical Programs: Caring for Families

The Sickle Cell Clinical Program at CHOP is one of the largest in the United States, providing comprehensive care and services to more than 1000 patients. The clinics are staffed by a multidisciplinary team of pediatric hematologists, hematology nurse-specialists, and social workers. Each patient is assigned a physician who manages his or her outpatient care, and family education is incorporated into all clinic visits.

Because sickle cell disease is a complicated condition with a wide array of symptoms, a broad range of specialty services is required to meet the children’s needs. Our patients have access to pediatric general surgeons, orthopaedic surgeons, ophthalmologists, neurologists, and pulmonologists with expertise in sickle cell disease, who all work closely with the child’s core team.

5 Million

  • The stroke team cares for sickle cell patients who are at risk or have experienced cerebrovascular complications.
  • Imaging techniques are used to identify chronic organ damage from red cell sickling and transfusional iron overload.
  • Social workers provide a wide range of services related to psychosocial needs in coping with chronic illness, as well as navigation through hospital and insurance systems. Parent and teen support groups are available.
  • All parents and patients can reach a hematologist on a 24-hour basis.
  • The Hematology Acute Care Unit (HACU) provides rapid evaluation and treatment for children with blood diseases. Parents may bypass the Emergency Department and come straight to the HACU for evaluation and treatment.
  • Transfusion protocols have been developed specifically for sickle cell patients through the Blue Tag and automated exchange transfusion programs.